Toronto, Union Station - Flash Mob

"Let's Dance for Diabetes."

On a busy Saturday morning at Toronto’s Union Station a group of performers assembled to dance for National Diabetes Awareness Month and World Diabetes Day 2018 (November 14, 2018).

This collaborative flash mob event was hosted by Deanna Paolantonio, founder of D-Dance and was supported by the Type 1 Diabetes Think Tank Network.

Deanna is a 30 year veteran of dance and recently received her PhD in the art. She is also has Type 1 diabetes and founded D-Dance to bring dance and education together in the form of workshops and active programming. “Let’s Dance with Diabetes!”

IMG_3742.jpg

Choreography was provided by ONETEAM MVMT.

#WDD2018 #NDAM

London Health Sciences Insight Session: September 10, 2018

Late this summer T1D Think Tank Network travelled to London, Ontario for our first Insight Session with London Health Sciences. We had an incredible turn out of 14 Health Care Professionals (HCPs) and 16 Persons Living with Type 1 Diabetes (PLT1Ds).

The challenges, solutions and discussions between all stakeholders was inspiring. We invite you to read our summary report below.

Read or download our full summary report below.

Diabetes Care: Open Call to Join a Quality Standards Advisory Committee

Open Call.jpg

Health Quality Ontario is leading the development of three new quality standard outlining what quality care looks like for people with:

They are seeking volunteers to help support and drive the development of this work.  If you or someone you know is interested, Health Quality Ontario is now taking applications from people who have diabetes, family members, health care professionals, administrators and researchers from across Ontario. 

To be considered you can APPLY HERE

The deadline is October 15, 2018. 

McGill Insight Session: May 31, 2018

On May 31, 2018, we held an Insight Session with McGill University in Montreal, Quebec. This Session brought together endocrinologists, diabetes educators, and other healthcare providers with a group of patient opinion leaders.

Take a look at some interesting moments and read our full detailed event summary below!

Read or download our full summary report below.

Diabetes Action Canada Collaborates with the Type 1 Diabetes (T1D) Think Tank Network to Understand Patient Perspectives in Using Health Data to Improve Research

T1DTTN - Insta Press Release- no link.jpg

In Canada, an estimated 300,000 Canadians have a diagnosis of type-1 diabetes (T1D) and this number is increasing annually.  Those living with T1D have complex health needs that require constant self-management and treatments, including continuous administration of glucose.   Most who live with T1D are very engaged in their treatment plans and use their personal health data and technology to monitor their health and well-being.  Members of the T1D community form a unique group who strive to connect with one another and who are keenly interested in clinical research.  Even with this interest, not all persons living with T1D have the opportunities or are aware of clinical research initiatives that are relevant to them.  Based on feedback from our Patient Partners, our Innovation in Type-1 Diabetes (iT1D) Research Program is working with an initial stakeholder group, including Patient Partners, to develop the framework for creating a pan-Canadian T1D registry.  This registry will connect persons living with T1D with clinical researchers and enabling them to use their health data (by consent) in population research and clinical trials to evaluate clinical effectiveness of new therapies and models of care and patient outcomes.

This is a big task that cannot be done alone and so the T1D Research Program is thrilled to announce a collaboration with the Type 1 Diabetes (T1D) Think Tank Network, a highly specialized and collaborative national network of patients, endocrinologists, diabetes educators, family practitioners, dieticians, nurses, pharmacists, patient support associations, and administrators, to proved expertise and guidance as we establish our T1D Registry. The T1D Think Tank Network is a not-for-profit organization in Canada providing innovative experiential education to the T1D community, including healthcare providers and T1D patient opinion leaders.  In collaboration with the T1D Think Tank, Diabetes Action Canada will host a one-day Insight Session (Workshop) in Toronto, ON to guide the planning of our T1D registry. We are specifically interested in understanding the views of individuals with T1D about using their health data to further research in Canada. As a collective, we plan to co-create a communication strategy that will include methods on engaging the T1D community, telling the story of the T1D registry in a patient-oriented manner, and testing consent questions and approaches to inspire enrolment.   The ultimate goal is to have the T1D Registry truly patient informed and operating independently from health care teams, with persons with T1D having the ultimate say on how their health data is used for research.  

This collaborative event will be held in November 2018.

Sign up for our newsletter to get the latest news on this initiative.

The First Annual T1D Golf Tournament for T1DTTN

The first annual Type 1 Diabetes golf tournament for T1DTTN was a massive success! We raised over $30,000 dollars!

The gorgeous Beverly Golf and Country Club in Copetown, Ontario hosted us with 150 attendee's for golf and dinner. Thank you to our sponsors, partners, golfers and volunteers we could not have done this without all of you!

We can't wait to see you next year so please save the date July 4th 2019.

McMaster Insight Session: February 9, 2018

On February 9, 2018, we held the next in our series of Insight Sessions, bringing together the team of endocrinologists, diabetes educators, and other healthcare providers from McMaster Children's Hospital with a group of patient opinion leaders.

We spent the day using interactive and entertaining methods to establish new communication channels between everyone involved in the delivery of care.

Take a look at some interesting moments and read our full detailed event summary below!

To read the full summary, please click here for the PDF version.

If you would like more information about the program or are interested in hosting an Insight Session, please email your interest to Michael Houlahan, Executive Director, T1DTTN by clicking here.

Sudbury Insight Session: March 31, 2017

On March 31, 2017, we held the next in our series of Insight Sessions, bringing together the team of endocrinologists, diabetes educators, and other healthcare providers from Health Sciences North with a group of patient opinion leaders.

We spent the day using interactive and entertaining methods to establish new communication channels between everyone involved in the delivery of care.

Take a look at our summary below!

If you would like more information about the program or are interested in hosting an Insight Session, please email your interest to Michael Houlahan, Executive Director, T1DTTN by clicking here.

Transition Insight Session: February 8, 2017

One of the programs run by T1DTTN is "The Insight Session” which is an opportunity for a select group of people living with type 1 diabetes and health care providers to sit together in an open, safe, non-judgmental format to share experiences. We used interactive and entertaining methods to establish new channels of communication between everyone involved in the delivery of care. 

On February 8, 2017, we held the next in our series of Insight Sessions, bringing together a select group of young people living with Type 1 diabetes with endocrinologists, diabetes educators, and other healthcare providers.

Watch our summary below!

The objective was to discover new ways to integrate the true patient experience into clinical practice. At the end of the day we kickstarted a new discourse in how we define, understand, and improve the outcomes of the transition age group (18-29 yrs.) and the T1 patient journey.

This special event, running from 5:30PM-9:30PM, was organized by the T1 Diabetes Think Tank Network (T1DTTN). If you would like more information about the program, please email your interest to Michael Houlahan, Executive Director, T1DTTN by clicking here.

Screen Shot 2018-10-02 at 11.46.43 AM.png

Connected in Motion Summer Slipstream - Sept. 16-18, 2016

We were able to participate in a wonderful event hosted by Connected in Motion. Instead of duplicating summaries, take a look at Heather's amazing description of the weekend by visiting Connected in Motion's website:

 Click the image above to read the weekend recap!

Click the image above to read the weekend recap!

A HUGE thank you to Erica Bota from ThinkLink Graphics for providing her artistic services throughout the weekend.

We're looking forward to participating in future Slipstream events!

Empathy leads to better communications, more positive health outcomes

 Empathy leads to better communications, more positive health outcomes

Two published articles in the Academic Medicine Journal of the Association of American Medical Colleges confirm what members of T1D TTN already know – empathy and communications lead to better health outcomes for people with T1D.  “Physician Empathy and Critical Outcomes for Patients with T1D” (Volume 86, March 2011, pages 359 - 364) and“The Relationship Between Physician Empathy and Disease Complications: An Empirical Study of Primary Care Physicians and Their Diabetic Patients in Parma, Italy” (Volume 87, September 2012, pages 1243- 1249) identify the factors that support empathy and communications as positive for both the healthcare provider and T1D patient. The Washington-based AAMC is a not-for-profit association dedicated to transforming health care through innovative medical education, cutting-edge patient care, and groundbreaking medical research. 

Transition into Better Care

Transition into Better Care

Becoming an adult, leaving high school, going away to university or college, and/or starting a full-time job are all part of the challenges that young adults face. Young adults with type 1 diabetes also face the added pressure of having to develop relationships with new healthcare providers at a different adult diabetes centre, and of starting the process of managing their diabetes all by themselves.

Summary of T1DTTN Board, Advisor and Partner Conversations

Summary of T1DTTN Board, Advisor and Partner Conversations

On July 9, The T1D Think Tank held an important open forum at the YWCA in downtown Toronto. The objective was two–fold. First, to provide a status update for all components of the work so far in terms of creative elements, and Collaborative Insight Session Projects.  Second, and more importantly, was to present a summary of an independent review of conversations held with the Board and a number of T1DTTN advisors and Partners.

Message from our President

Message from our President

It has been a very exciting time since we kicked off the T1D Think Tank Network back in May 2013. Frankly, the reaction to that inaugural event was overwhelming and unexpected. Making sense of how our uniquely creative and collaborative methods had uncovered a process that had such a positive impact on the relationship between patients and health care professionals forced us to step back for a while so as to understand it properly.